What is the Heartburn Health programme
The Heartburn Health programme will build a community of volunteers to help improve care for people with heartburn, acid reflux and indigestion. The programme will allow experts to research issues like:
The Heartburn Health team will invite millions of people from different regions in the UK to take part. By building a detailed picture of these symptoms and trying new tests and treatments for related health conditions, Heartburn Health will help find better ways to care for people with reflux.
Visit the Heartburn Health website
The research study will invite people from across the UK to take part. You do not have to accept the invitation.
If you decide to take part, you will be asked to provide consent to join the research study. If you do not wish to receive an SMS invitation from Digital Health and Care Wales you can opt out of being invited below.
How DHCW uses your information
DHCW has been asked to identify people who live in Wales who may be eligible and to invite them to join the Heartburn Health programme. We will use the data we hold to identify potentially suitable people and contact details will be securely passed to iPlato who will send an SMS text invite on behalf of the Heartburn Health programme. The data used will include name and mobile number. Your personal data will not be shared directly with the research study team.
To manage the invitation process, we will need to keep the list of people who have been invited until six months after the research study recruitment is complete. This is to ensure that you are not invited if you have told us you do not want to be contacted.
After this time, all the information stored for the purpose of this research programme will be deleted.
We will use your data to produce summary reports to monitor recruitment into the research study (for example how many people were invited). These reports will not identify you personally.
Digital Health and Care Wales (DHCW) is an expert national body and part of NHS Wales. We work in partnership with NHS Wales colleagues and other key stakeholders to provide national digital and data services which support the delivery of health and social care in Wales. Our services, as directed by Welsh Ministers, include processing and dissemination of data to enable general medical research.
Additionally, the Health Research Authority has provided legal support to the Heartburn Health programme under Section 251 of the NHS Act 2006 and Regulation 5 of The Health Service (Control of Patient Information) Regulations 2002 which enable the common law duty of confidentiality to be temporarily lifted so that confidential patient information can be processed by DHCW on behalf of the research study. This support provides the legal basis for suitable participants to be invited to join the research study. This is following advice from the Confidentiality Advisory Group, an advisory body which provides independent expert advice on the use of confidential patient information without consent in England and Wales.
Your rights over your personal data
To read more about the health and care information DHCW collects, our legal basis for collecting this information and what choices and rights you have, see how Digital Health and Care Wales handles data about you.
Opting out of receiving an invitation:
If you do not want to be invited by DHCW to take part in the Heartburn Health programme, you can:
Call the team on 0808 281 4772, and they can complete the form for you
If you opt out:
Your details will not be recorded in the Heartburn Health database
DHCW will not contact you about this programme
Other organisations may still contact you about the programme in future, but you will always have the choice whether to take part
You can submit the form if you do not want to be invited to take part in the Heartburn Health programme. More information is available on the Heartburn Health programme website.